Update on my FA (Fanconi Anemia) Friends

Me with John Hanna 

I met my friend, John Hanna (age 38), when I came to NYC  in November.  In 2007 he was diagnosed with tongue cancer, which can be a complication of FA.  Unfortunately, John passed away a few weeks ago after a long battle with head, neck and throat cancer.  John was a huge inspiration to all of the FA community and will really be missed.  Please be in prayer for his wife, Racquel, and their two daughters during this difficult time.

Me, Edwin and his mother who was his donor

Me, Edwin and Dr. Boulad

I also met Edwin (age 27) when I came to NYC in November.  He had been diagnosed with MDS (Myelodysplastic Syndrome) and had a bone marrow transplant mid November.  His transplant went well and he got to go home.  But, he has been back in the hospital for over two months now battling CMV (Cytomegalovirus) and some other complications.  Please continue to be in prayer for him and that he will be able to leave the hospital soon!  He is engaged to a beautiful girl named Yalitza and they just celebrated their five year anniversary!

Foto Friday

Right now I am still living in isolation as my immune system is recovering from transplant.  The only indoor places I can be are at my apartment and the hospital.  I have to wear a mask when I go to the hospital or ride in a cab.  But, I am very thankful that I can walk outside as much as I want without wearing a mask.  The weather is getting warmer and I am able to go for daily walks.  I have walked around in Central Park and taken a few carriage rides.  Fortunately, we live about 6 blocks from the East River.  There is a walkway along the river that leads to Carl Schurz Park.  I love going for walks while listening to worship music on my iPod shuffle.  This is one thing I will miss about NYC.  Here are a few pictures of the walkway and park.